ACLAPA

Resources & Support

Information and support for families and clinicians.

Trusted, up-to-date links for support groups, Medicare information, multidisciplinary Cleft Units around Australia and New Zealand, and answers to the questions we are commonly asked.

The basics

What is cleft lip & palate?

A cleft occurs when parts of the upper lip, gum, and roof of the mouth don’t fully join during early pregnancy, usually between the 7th and 12th weeks. A baby can be born with a cleft lip, a cleft palate, or both.

Cleft lip and palate is one of the most common conditions that can be present at birth, occurring in approximately 1 in 800 births in Australia. Most children born with a cleft have no other congenital differences.

Care is delivered by a multidisciplinary team of surgeons, speech pathologists, orthodontists, dentists, nurses and many other health care professionals, working together across a child’s growing years. With coordinated multidisciplinary treatment, outcomes are excellent.

1 in 800

births in Australia are affected by a cleft.

7–12

weeks of pregnancy when a cleft typically forms.

A team approach

Coordinated multidisciplinary care from birth through to maturity

Surgeons · Speech pathologists · Orthodontists · Dentists · Nurses coordinated care from birth through the teenage years.

Funding & support

Medicare Assistance

Eligible cleft-related care is supported in Australia through Medicare. Follow the official links below for current details.

Medicare Assistance

Benefits for eligible cleft-related dental, orthodontic and related care. Managed by Services Australia.

 

New

Speech Pathology Medicare Coverage

Changes to the Medicare Benefits Schedule in 2026 means that some cleft-related speech pathology services are now eligible for Medicare funding.

You're not alone

Support groups

Family-led groups across Australia and New Zealand.

International support

Groups further afield offering excellent family resources.

Directory

Find a cleft unit

Specialist multidisciplinary cleft units across Australia and New Zealand.

Melbourne, VIC

The Royal Children’s Hospital Melbourne​

50 Flemington Road 

Parkville  VIC   3052

Adelaide, SA

Women's & Children's Hospital

72 King William Rd

North Adelaide SA 5006

perth, WA

Perth Children's Hospital

15 Hospital Avenue

Nedlands  WA  6009

sydney, NSW

Sydney Children's Hospital

High Street

Randwick NSW 2031

sydney, NSW

The Children's Hospital at Westmead

Cnr Hawkesbury Road and Hainsworth Street
Westmead, Sydney, NSW 2145

newcastle, NSW

John Hunter Children’s Hospital

Lookout Road

New Lambton Heights  NSW  2305

South Brisbane, QLD

Queensland Children’s Hospital

501 Stanley Street 

South Brisbane   QLD   4101

Townsville, QLD

Townsville University Hospital

100 Angus Smith Dr

Douglas QLD 4814

melbourne, nsw

Monash Children’s Hospital

Level 2/246 Clayton Rd

Clayton VIC 3168

Auckland, NZ

Auckland Regional Cleft Service

Middlemore Hospital
Hospital Road, Otahuhu
Auckland, New Zealand 1640
Private Bag 93311

Christchurch, NZ

Christchurch Hospital

2 Riccarton Avenue

Christchurch, New Zealand 4710

Private Bag 4710

Lower Hutt, NZ

Hutt Hospital

638 High Street, Boulcott
Lower Hutt, New Zealand 5010
Private Bag 31907

Hamilton, NZ

Waikato Hospital

Pembroke Street
Hamilton, New Zealand 3240
Private Bag 3200

Questions we hear often

Frequently asked questions

Medicare provides some funding for dental and orthodontic services for eligible cleft and craniofacial conditions. More information can be found on the Services Australia website (https://www.servicesaustralia.gov.au/cleft-and-craniofacial-conditions).  Availability of services vary around the country and so it is suggested that this is discussed with your local multidisciplinary cleft team.

Since 2026, the Medicare Benefits Schedule was expanded to include some Speech Pathology services for cleft conditions. More information can be found at https://www.health.gov.au/sites/default/files/2026-05/diagnosis-and-treatment-for-eligible-disabilities-fact-sheet.pdf . Availability of services vary around the country and so it is suggested that this is discussed with your local multidisciplinary cleft team.

If you are unsure about anything related to cleft care, please discuss this with your local multidisciplinary cleft team.

Contact details of the multidisciplinary cleft units around Australia and New Zealand are listed here.  You will usually need a referral letter from your local doctor, general practitioner or paediatrician.

ACLAPA membership is available to healthcare professionals who are actively involved in the management of patients with cleft lip, cleft palate and associated conditions. A membership application form is available here, and the ACLAPA Committee will be in touch.  If you require more information, please contact the ACLAPA Committee here. 

Looking for more?

Trusted external resources

Groups further afield offering excellent family resources.

 

American Cleft Palate–Craniofacial Association

Craniofacial Society of Great Britain & Ireland

Anti-bullying support

Confidence & school-age help

Resources supporting children and young people with a visible
difference.

ACPA – school-age support

Changing Faces (UK)

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